When I was first diagnosed with Parkinson’s Disease (PD) nearly seven years ago, I knew virtually nothing about the disease. Like many, I knew that it caused tremors and that’s about it. I was shocked to learn that Parkinson’s can cause a multitude of other problems. From time to time in this blog, I will address some of these lesser-known PD symptoms. Today it will be hallucinations.
When you hear the word hallucination, what comes to mind? An acid trip with groovy patterns and colors everywhere? Or pink elephants, maybe? For many folks with PD, hallucinations are an everyday occurrence, and may be very different from what one might experience with a hallucinogenic drug. PD-induced hallucinations may be utterly convincing – not “trippy” at all – and may be as simple as seeing (very clearly) someone who isn’t actually there. But wait, there’s more! Hallucinations are not limited to “seeing things.” Tactile hallucinations are also quite common with PD, and are the extent of my personal experience with PD-induced hallucinations.
I have had three distinct types of tactile hallucination, each of which I experienced multiple times.
- I feel my phone vibrating in my pocket. I go to pull the phone out, only to find there’s nothing in that pocket.
- While walking outdoors, I feel a raindrop on my bald head. I look up, but there are no clouds to be seen. I place my hand on top of my head, and my hand finds no water.
- I feel a bug crawling on my arm. I look, and there’s nothing there. Well, my arm is there. But no bug.
There is now a drug on the market that is specifically intended to treat Parkinson’s-induced hallucination. However, in my case, the hallucinations stopped as soon as I started taking carbidopa / levodopa. So I started eating peyote again.
Hahahahahaha. You buried the lead.
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So your hallucinations started before you started taking meds?
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Excellent question! I don’t remember exactly when the hallucinations started, but I *think* I was already taking pramipexole (Mirapex) at the time. Pramipexole was the first PD med I was on; Levodopa was added to my regimen later.
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