Travel is hard. Especially when you’re skipping across time zones and have medication you take every three hours. And very especially when you also have to get up super early to catch your flight. I set my alarm for 3:45 AM. I had decided the … Continue reading Colorado 2022 Trip Report (Day 0)
“If it’s true that you are only as old as you feel, then my age fluctuates massively throughout the day.”
I wrote the sentence above, as the first line of this blog’s Introduction nearly a year ago. Since then, thanks to additional medications, these massive fluctuations all but disappeared. But since Since then, thanks to the progression of the disease, the fluctuations and general fatigue are creeping back in. Right now, I’m getting ready to head out on another Colorado trip, so watch for my periodic Trip Reports from the field! When I get back, I intend to undertake an overhaul of this blog. OK, maybe not a full-fledged overhaul. But at the very least, I intend to remove the year-old Introduction post, and instead link to a separate page where I will have actual biographical information. That page will also have a section detailing (as well as I can remember it) my experiences with Parkinson’s disease, the symptoms I’ve had along the way, and the various treatments I’ve tried. There will also be a section explaining my over-arching, long-term travel plan (though I’ve not done a great job of sticking with it).
I’m not sure how long it will take to write all that, but I imagine it will take all of my writing time for a few weeks. SO…the next two weeks should be Trip Reports from Colorado. After that, there maybe a month or more of posts where I just copy/paste something I wrote in the past (Cedric Explains 1980s Video Games and Random Thoughts From a Damn Weirdo are recent examples of such posts). Oh, but then it’ll be Bear’s birthday, so that’ll occupy my time for a few weeks…
I have long contended that U.S. Interstate Highway 70 through western Colorado is the most scenic length of Interstate in the country. I finally set out to prove it in the Spring of 2013, after having lived in Colorado for nearly 22 years. During one … Continue reading I-70 in Western Colorado (Spring 2013)
Let’s try a serious Parkinson’s-related post. I haven’t done that in awhile.
I recently got an email from one of the Parkinson’s-related charities that I’ve subscribed to (I can’t remember which one) that talked about a probiotic that has been found to reduce the symptoms of Parkinson’s. I had to follow a slight maze of links, as the manufacturer of this probiotic was recently bought by another company, and the product name has been changed. The product is currently called Neuralli, with the important ingredient being a probiotic called PS128. Their web site leaves something to be desired, but I was able to order a one-month supply. I don’t remember exactly how long it took to arrive, but it seems to me that it was longer than I had expected.
Once it arrived, it only took a few days before my off periods were less noticeable. I had more energy and less anxiety than I normally do when my levodopa is wearing off. I ran out of the initial supply of Neuralli about a week ago, and my off periods seem to be getting worse again. So I can honestly say that Neuralli seems to help. But it ain’t cheap. That said, I have ordered more; I just hope it gets here before my upcoming Colorado trip.
Here’s the news article.
UPDATE: My second shipment took less than two days – arriving a full week before my trip.
My dog is being rambunctious again. Maybe I should get some video of him being rambunctious, but it’s so short-lived that I doubt I could ever catch it. And now, as if to illustrate my point, the rambunctiousness has given way to howling at distant sirens. What type of sirens? Fire? Ambulance? Police? Nope. Those are definitely air raid sirens. The British are coming! The British are coming! Let’s see, how did that go? One if by land, two if by sea, 3.14 if by air?
On an unrelated note: I wonder if there are any a cappella heavy metal groups
NOTE: After typing the previous sentence, I did some googling. I found that not only does such a thing exist, but I should have KNOWN it exists, because I’m certain I’ve heard this one before:
Greetings, friends and enemies! (To Hell with the indifferent!) This week’s jaunt back through time takes us to the long-abandoned Argentine Central Railway. Despite the name, this railway was located not in Argentina, but in Colorado. It operated from 1906 to 1918, and is best … Continue reading Argentine Central Railway (Spring 2013)
This coming Monday (September 12th) is National Video Games Day. Since it falls on a Monday, I intend to celebrate it as a three-day Video Games Weekend! That doesn’t mean I’ll spend the whole three days playing games on my laptop and/or phone. I also … Continue reading Cedric Explains 1980s Video Games
A mere three weeks ago, as part of my “Colorado Hodgepodge” post, I showed y’all a few pics taken in and around Central City, Colorado. When those pics were taken, I had arrived fairly late in the day. As a result, daylight was waning (waindwops … Continue reading Central City, Colorado (Spring 2013)
I haven’t listened to my old “Who’s Greatest Hits” CD for a long time, so I decided to play it while I type up this entry. Nearly the first thing I heard was, “Hope I die before I get old.” And I’m thinkin’: “Too late…I’m already old.” This despite the fact that I’m not even 50. But Parkinson’s Disease (PD) can sure make you feel old. Which scares me, because…what will it be like if/when I still have PD AND am actually old? Hopefully by then there will be something akin to a cure. I know there are “gene therapy” treatments that have reached the human testing phase. I really want to stay up on these things, so I signed up for a Parkinson’s Foundation webinar on the topic of gene therapy. Then I checked my calendar and realized that I’m planning on being in Dinosaur National Monument that day. I’m sure they’ll record the webinar and post it on their site, so I’ll be able to go back and watch it any time. But will I actually do it? Or will I continue wasting my time playing Cities: Skylines and reading web comics?
In other news: I’m a boy, I’m a boy, but my mom won’t admit it.
In real other news: I recently enrolled in MediCare, specifically a MediCare Advantage Plan (i.e., through an insurance provider) that includes prescription drug coverage. Under this plan, three of my meds have a zero-dollar co-payment. But the stuff that’s been ensuring I sleep at night is not exactly covered. I say “not exactly” because Mirtazapine is covered, but only up to 15 mg per day, and I’ve been taking 22.5 mg each day. So, I tried scaling back to 15 mg per day. That was three or four weeks ago and I’m happy to report that I’m still sleeping well. Until the last 3 days, that is. But hopefully the last few nights of less sleep are just due to me staying up too late. Which I’ll be doing more of now that football season is beginning, and I’m still living two time zones east of my alma mater.
Welcome back to Voyages with Parkinson’s, better known (to me, anyway) as TremorTravel.com! For this week’s ThrowBack Thursday, we continue the Colorado Camera Craziness that was the spring of 2013. This week, we visit the canyons of the forks of the South Platte River. These … Continue reading South Platte Canyon (Spring 2013)
Voyages with Parkinson's 