Ladies and gentlemen, boyds and gorillas, today marks a major milestone in my life. Ten years ago today, I received my Parkinson’s Disease (PD) diagnosis. Yup, believe it or not, it has been an entire decade. In that time, I have been through quite a few ups and downs with PD (not to mention other aging-related issues like arthritis and generalized hurtiness disorder). This special occasion, combined with the fact I have been failing to update this blog regarding recent developments in my PD treatments, has got me ta thinkin’ I should give y’all an update on my PD status. The one thing I have kept you up-to-date with is Lions Mane Mushrooms. If you’ve missed my lions mane posts, click here for the latest. I hope to get you some updates shortly regarding Nicotine, timed-release Levodopa, and a stool softener (and of course, this week’s ThrowBack Thursday).
Author: ceddammit
Boreas Pass and Como (21 August 2010)
In August 2010, a friend and I ventured into the mountains west of Denver, Colorado to partake in Boreas Pass Railroad Day. Boreas Pass sits between the towns of Breckenridge and Como. These days, you can drive a car over Boreas Pass, but at one … Continue reading Boreas Pass and Como (21 August 2010)
Arches National Park (May 2010)
In May of 2010, I headed out with a few friends on our roughly annual western Colorado mountain biking trip. But this time, we went farther than western Colorado: to the town of Moab in eastern Utah. My friends, who were all in much better … Continue reading Arches National Park (May 2010)
Homestead Meadows (Summer 2008)
Two months ago, I took you on a magical voyage to a land called Homestead Meadows. In that post, I explained that Homestead Meadows contains historic remnants of eight homesteads, accessible via 15 miles of trails. But even back in 2008, a 15-mile hike was … Continue reading Homestead Meadows (Summer 2008)
Glenwood Canyon (April 2009)
Today’s ThrowBack Thursday takes us to the greater Glenwood area of west-central Colorado in late April 2009. My mountain biking buddies decided we should ride the Forest Hollow Trail. The plan was to use our multiple cars to do it as a shuttle route. That … Continue reading Glenwood Canyon (April 2009)
Mountains, Foothills, and Wind Tunnels
Welcome to another ThrowBack Thursday hodgepodgery! Today, we visit three locations. We’ll start at a scenic overlook just inside Colorado’s Golden Gate State Park. The date is May 25, 2009 and we are visiting Panorama Point Scenic Overlook & Picnic Area. But I didn’t bring … Continue reading Mountains, Foothills, and Wind Tunnels
Lion’s Mane Mushrooms: The Last Word (?)
One year ago, I started taking lion’s mane mushrooms in capsule form. This is merely a dietary supplement, so there’s no need for a prescription, and I expected it could take weeks or even months to see any results. Thus, I told you at the time that I would report back with any results after a year. And so, here we are. And I have indeed noticed significant improvements in some areas. These are those:
Better Sleep:
Prior to starting the lion’s mane regimen, I would often wake up multiple times during the night. Sometimes I could get back to sleep, sometimes not. In any case, I almost always got out of bed between 4:00 and 7:00. After about five months on lion’s mane, I began experiencing solid sleep. Once in a while, my dog wakes me up, or I’ll get up to urinate, but I almost always get back to sleep quickly. And I’m sleeping until somewhere between 7:00 and 9:00 (some days, even later).
Awakening Alive:
Before the shrooms, when I got up in the morning, I would take the day’s first dose of Levodopa (Levo) then just crash on the couch for half an hour (which is about how long it takes for the Levo to kick in). Until the Levo took effect, I usually felt incapable of doing ANYthing. Since about five months after starting lion’s mane, I have generally felt capable of doing things the instant I get out of bed. Once in a while, I even forget to take the day’s first dose of Levo!
Off Periods Reduced:
I take Levo every 3 waking hours. Prior to shroomin’ it up, I could always feel when time was approaching for the next dose. About 2.5 hours after taking a dose of Levo, I would start having anxiety, or sometimes depression. Since about five months after starting lion’s mane, the anxiety / depression have been noticeably less prevalent, and the Levo doses don’t tend to start wearing off until just a few minutes before my next dose is due. I’ve even been seriously late (up to nearly two hours late) taking a dose, and STILL didn’t have any anxiety / depression (though I did feel the ol’ physical fatigue on those occasions).
No RLS:
Before lion’s mane, I tended to experience Restless Leg Syndrome (RLS) one or two nights per week. (In my case, it manifests in the upper body, so I call it Restless Arm Syndrome.) Over the past month, I have only experienced RLS / RAS once. And that one time may not even have been RAS, as I was laying on the couch in a goofy position. And I’ve also been taking nicotine supplements during that time, so it’s conceivable that nicotine is what fixed the problem.
Reduced Medication:
I might expect improvements such as those described above if I had added a new medication or increased the dosage of one I’m already on. But there have been no such additions / increases. In fact, around the time I started noticing these improvements, I actually decreased one of my meds. I get Pramipexole (Prami) in tiny 0.125 mg pills. I had been taking eleven of these each day for the last few years, but reduced it to nine each day. (Since then, I tried reducing it to eight, but that led to a significant increase in anxiety.)
In conclusion, I highly recommend all you Parkinson’s sufferers out there try taking a lion’s mane mushroom supplement for at least a few months. But make sure you read those labels first to make sure you’re getting the correct part of the mushroom. Y’see, there are two main parts to a mushroom: the fruiting body and the mycelium. According to the articles I read, the helpful stuff is found only in the mycelium. I saw quite a few products on Amazon that only mentioned fruiting bodies. In the end, I settled on a brand that says it contains both parts.
Texas and Trinidad (November 2008)
Over the first two days of November 2008, I drove from southern Arkansas back to my home (at the time) in Colorado. I took the scenic route, enjoying two beautiful canyons in north Texas, and spending a day at the southern Colorado city of Trinidad. … Continue reading Texas and Trinidad (November 2008)
Arkansas and Texas (October 2008)
Howdy, folks! And I do mean “howdy” because this week’s ThrowBack Thursday finds us in Texas. But mostly Arkansas. I also have a special treat for you, or at least those of you named Beavis: I tried my hand at photographing FIRE! Y’see, this was … Continue reading Arkansas and Texas (October 2008)
Western Colorado (April 2008)
If you’re hoping to see a Halloween post, then try this one. Today’s post is not Halloweeny. That is, unless you’re dressed as a cactus or a headless chicken. During my last few years of living in Colorado, I made regular (roughly annual) treks to … Continue reading Western Colorado (April 2008)