Category: symptoms

Seasonal Affective Disorder?

After my first few years with Parkinson’s Disease (PD), I noticed that about once a year, the PD would get significantly worse for a few weeks or months. I would tell my PD specialist about the new problems, and we would change something in my pill regimen, after which I would soon feel significantly better. But it occurred to me recently that, at least for the last two years (probably more), these Annual Worsenings have taken place during the winter months, with the Annual Get Betterments happening in the spring.

I’ve never seen Seasonal Affective Disorder listed as being associated with PD, but I’m beginning to think I may have both. The true test would be to buy a winter home in New Zealand, but I don’t want to be on a flight that long. So, I guess we’ll never know. On a completely unrelated note:

Over the last coupla days, whenever I’ve opened Microsoft Edge, I’ve been greeted by the screen shown below…

I keep asking myself, how exactly does one “celebrate 50 years of Microsoft”? The imagery that pops into my head is a guy yelling, “Wooooo! Let’s get rip-roarin’ drunk and try to install Windows For Workgroups 3.11 from floppy diskettes!” And, as pathetic as it sounds…I kinda wanna join him.

Oh, Poo!

WARNING: This post contains frank descriptions of poop. Do not read this post while operating machinery (except maybe a manure spreader). It’s been two and a half years since this blog last addressed constipation. During that time, my own constipation has very gradually worsened. Mannitol, … Continue reading Oh, Poo!

10 Flippin’ Years

Ladies and gentlemen, boyds and gorillas, today marks a major milestone in my life. Ten years ago today, I received my Parkinson’s Disease (PD) diagnosis. Yup, believe it or not, it has been an entire decade. In that time, I have been through quite a few ups and downs with PD (not to mention other aging-related issues like arthritis and generalized hurtiness disorder). This special occasion, combined with the fact I have been failing to update this blog regarding recent developments in my PD treatments, has got me ta thinkin’ I should give y’all an update on my PD status. The one thing I have kept you up-to-date with is Lions Mane Mushrooms. If you’ve missed my lions mane posts, click here for the latest. I hope to get you some updates shortly regarding Nicotine, timed-release Levodopa, and a stool softener (and of course, this week’s ThrowBack Thursday).

Lion’s Mane Mushrooms: The Last Word (?)

One year ago, I started taking lion’s mane mushrooms in capsule form. This is merely a dietary supplement, so there’s no need for a prescription, and I expected it could take weeks or even months to see any results. Thus, I told you at the time that I would report back with any results after a year. And so, here we are. And I have indeed noticed significant improvements in some areas. These are those:

Better Sleep:

Prior to starting the lion’s mane regimen, I would often wake up multiple times during the night. Sometimes I could get back to sleep, sometimes not. In any case, I almost always got out of bed between 4:00 and 7:00. After about five months on lion’s mane, I began experiencing solid sleep. Once in a while, my dog wakes me up, or I’ll get up to urinate, but I almost always get back to sleep quickly. And I’m sleeping until somewhere between 7:00 and 9:00 (some days, even later).

Awakening Alive:

Before the shrooms, when I got up in the morning, I would take the day’s first dose of Levodopa (Levo) then just crash on the couch for half an hour (which is about how long it takes for the Levo to kick in). Until the Levo took effect, I usually felt incapable of doing ANYthing. Since about five months after starting lion’s mane, I have generally felt capable of doing things the instant I get out of bed. Once in a while, I even forget to take the day’s first dose of Levo!

Off Periods Reduced:

I take Levo every 3 waking hours. Prior to shroomin’ it up, I could always feel when time was approaching for the next dose. About 2.5 hours after taking a dose of Levo, I would start having anxiety, or sometimes depression. Since about five months after starting lion’s mane, the anxiety / depression have been noticeably less prevalent, and the Levo doses don’t tend to start wearing off until just a few minutes before my next dose is due. I’ve even been seriously late (up to nearly two hours late) taking a dose, and STILL didn’t have any anxiety / depression (though I did feel the ol’ physical fatigue on those occasions).

No RLS:

Before lion’s mane, I tended to experience Restless Leg Syndrome (RLS) one or two nights per week. (In my case, it manifests in the upper body, so I call it Restless Arm Syndrome.) Over the past month, I have only experienced RLS / RAS once. And that one time may not even have been RAS, as I was laying on the couch in a goofy position. And I’ve also been taking nicotine supplements during that time, so it’s conceivable that nicotine is what fixed the problem.

Reduced Medication:

I might expect improvements such as those described above if I had added a new medication or increased the dosage of one I’m already on. But there have been no such additions / increases. In fact, around the time I started noticing these improvements, I actually decreased one of my meds. I get Pramipexole (Prami) in tiny 0.125 mg pills. I had been taking eleven of these each day for the last few years, but reduced it to nine each day. (Since then, I tried reducing it to eight, but that led to a significant increase in anxiety.)


In conclusion, I highly recommend all you Parkinson’s sufferers out there try taking a lion’s mane mushroom supplement for at least a few months. But make sure you read those labels first to make sure you’re getting the correct part of the mushroom. Y’see, there are two main parts to a mushroom: the fruiting body and the mycelium. According to the articles I read, the helpful stuff is found only in the mycelium. I saw quite a few products on Amazon that only mentioned fruiting bodies. In the end, I settled on a brand that says it contains both parts.