Category: symptoms

Nevada 2024 Trip Report (Day 1)

Today was a long day. First, I couldn’t sleep last night; this appears to be happening every time I travel now. At a little after 5:00 AM, I left home and headed to the Charlotte airport. Here, I found the line just to drop off a checked bag for an American Airlines flight was nearly as long as the TSA line. And both were HUGE! It was cold this morning in Charlotte, and there are some cold days in the forecast for this trip, so I was wearing my winter coat. In this mass of humanity. By the time I had to take off my coat at the security checkpoint, I almost couldn’t get the thing off, as I had been sweating so much that the inside of the coat sleeves were soaked to the point of sticking to my arms! Ultimately, I was reminded yet again that I need to get TSA Pre-Check.

Then there was The Flight. I was flying to Las Vegas, Nevada, but had a stop in Los Angeles, California. From Charlotte to L.A. is a 5.5-hour flight, and for a flight that long, I did NOT want to be stuck in “Basic Economy” (read “no leg- or even foot-room”). So, I threw down an extra ninety bucks for an exit row seat. I also took a dose of Lorazepam, hoping this would keep any anxiety at bay AND cause me to sleep through the flight. I did sleep off and on, and the leg room was marvelous!

It took a LONG walk to switch planes in L.A. I have to say, there are large portions of LAX that look more like a high school basement than a major city’s international airport. But never mind that. I made it to the second flight, and on into Las Vegas with no trouble. Since my flight was an early one and I was flying west across three time zones, it wasn’t much past lunch time when I got my rental car. So, I headed to Naked City Pizza, which was recommended on the “Diners, Drive-Ins, and Dives” web site, which specifically endorsed (among other things) the “Steak and Cheese Fries”. So that’s what I ordered. I was a little disappointed. They were good, but not the taste explosion I was hoping I would get.

After lunch, it was still a little too early to check into my hotel room at The Strat (formerly The Stratosphere). So, I hit up the “Pinball Hall of Fame” (PHOF). Please note that this place is not so much a “Hall of Fame” as it is a HUGE arcade with an amazing selection of pinball machines of all ages. There are a fair number of arcade video games as well, and a couple other coin-operated machines of yesteryear. For my purposes, I’ll divide the pinball machines into three categories, like so:

  1. Old (anything built before 1980). PHOF has an AMAZING selection of Old pinball machines, many of which you can still play. Many others cannot be played at any given time, which is understandable, since it must be hard to find parts for them.
  2. Middle-Aged (built between 1980 and 2000). All my favorites fall into this category. I was a little upset at the condition of most of these machines. Yes, it’s gotta be increasingly difficult to find parts for them, but I’ve seen machines in dive bars that are better maintained than many of these are at PHOF. Some of them weren’t even leveled – they wobbled back and forth as if one leg were shorter than the others.
  3. New (built in the 21st century). PHOF had a surprisingly large variety of New machines, and all the ones I tried were in great working order!

Much to my dismay, my arms started cramping after a couple of hours here, so I checked into the hotel and just rested until bed time. I am hoping to go back to PHOF before I leave Las Vegas. If I do, I’ll try to get some pics while I’m there.

Stay tuned, this is planned to be a long and varied trip, so there’s MUCH more to come!

Self-Medication, continued

A week ago, I slightly increased my Pramipexole dosage, in the hope it would address the off periods I have been experiencing lately. While there has been some improvement, I’m still not where I want to be. The anxiety and depression have been reduced over the last week, but the physical exhaustion is still as bad as ever. Worse, a fresh dose of levodopa no longer reliably vanquishes the exhaustion. So my guess is that the new levodopa pump wouldn’t help me. It may be time to add yet another different drug to my daily routine. Or maybe I should stop carrying all this Kryptonite around with me.

Parkinson’s Pump? Pish-Posh!

Several weeks ago, I mentioned the possibility of my getting a Levodopa pump system “installed” on my person. I have since decided against the pump, despite the fact I never looked at the additional information I had requested. For me, it comes down to two things:

  1. Travel. Getting through the security screenings at airports is enough of a struggle as it is. I don’t want to add the complexities of explaining the electronic device that I’m hiding under my clothing.
  2. Infection. I know my hygiene habits. So, I know running a tube from my duodenum to the outside world absolutely will lead to perpetual infection.

But, as I said in the previous pump post, something has to change. And now I think I know what that is. The reason I feel like something must be changed is not because of the physical fatigue I’ve been experiencing, or any of the motor symptoms. It’s because of the anxiety and depression that come with most of my Off Periods. When this has been the case in the past, it has been successfully countered by slightly increasing my Pramipexole dosage. So, I’m increasing it from 11 pills a day to 12. After a week or so, I’ll take stock of my situation and go from there.

As for the pump, it’s still a possibility down the road. But it’s not happening until I’m so far gone that someone else is in charge of my hygiene.