I’ve been having a couple of vision issues lately that I’d like to type about. One is definitely Parkinson’s-related hallucinations. The other may be Parkinson’s-related, but I really don’t know. Let’s start with the stuff that I’m certain is caused by Parkinson’s Disease (PD).

As I’ve mentioned previously, I’ve had testicular tactile hallucinations, but not the visual type. Well, that’s changed now. It started several weeks ago, and so far, it’s been pretty subtle. I don’t get, for example, visions of Godzilla popping up right in front of my face. It’s always something in my peripheral vision, and it usually starts as an object(s) that is actually there. For example, when I’m sitting at my computer desk, I can see the side of my entertainment center out of the corner of my eye. That entertainment center will slowly morph into the shape of a human being. Regardless of what the object actually is, the hallucination that it becomes is always a person. These imaginary people never move, and they never say anything. Sometimes they appear to be staring at me; other times, they’re looking elsewhere. And I always know there’s nobody there, but I turn to look, anyway – I just have to. This happened very frequently throughout the day when I was at the Houston Museum of Natural Science. It actually seems to have stopped happening now (at least for the last week).

As for the other visual weirdness, I’m not sure if it’s a PD-related hallucination for two reasons:

1. It’s been happening for at least a few years now, and it didn’t stop happening when the peripheral vision people stopped appearing a week ago.
2. I’m not even sure whether it’s a hallucination. It could be an eye health issue.

Imagine you have printed out a page of text. Why? That’s not important; stay focused, DAMMIT! Now imagine you have a serving tray that you stole from your neighborhood Burger King, and the tray has a thin layer of water in it. You take the printout and cut out each individual word, one by one. As you cut them out, you float each slip of paper in its place on the water in the tray. You end up with all the words in the correct order, and you can read the text with no difficulty. It’s just that each word is slowly floating around in its place, occasionally bumping into and bouncing off of another word. That’s what I see when I read text on a computer monitor – the words are individually MOVING. But not to the point of interfering with my ability to read them. Sometimes, some of the words appear to be throbbing – like someone keeps clicking the Bold button, or making small changes to the font and/or size. This has been going on with computer monitors for a few years, but on that day in the Houston Museum of Natural Science, I experienced this phenomenon with the printed text that’s posted next to the items on display. There was one exception. On one of the placards, the words weren’t moving individually nor were they throbbing. Rather, the entire placard appeared to be moving away from me.

This reminds me. I heard recently that there has been talk about trying psilocybin (the hallucinogen found in “magic mushrooms”) to treat PD. Seriously…psilocybin, LSD, and of course, THC. I doubt the federal government would decriminalize these things even if there ended up being positive medical results, so I’m not getting my hopes up.

When I was first diagnosed with Parkinson’s Disease (PD) nearly seven years ago, I knew virtually nothing about the disease. Like many, I knew that it caused tremors and that’s about it. I was shocked to learn that Parkinson’s can cause a multitude of other problems. From time to time in this blog, I will address some of these lesser-known PD symptoms. Today it will be hallucinations.

When you hear the word hallucination, what comes to mind? An acid trip with groovy patterns and colors everywhere? Or pink elephants, maybe? For many folks with PD, hallucinations are an everyday occurrence, and may be very different from what one might experience with a hallucinogenic drug. PD-induced hallucinations may be utterly convincing – not “trippy” at all – and may be as simple as seeing (very clearly) someone who isn’t actually there. But wait, there’s more! Hallucinations are not limited to “seeing things.” Tactile hallucinations are also quite common with PD, and are the extent of my personal experience with PD-induced hallucinations.

I have had three distinct types of tactile hallucination, each of which I experienced multiple times.

1. I feel my phone vibrating in my pocket. I go to pull the phone out, only to find there’s nothing in that pocket.
2. While walking outdoors, I feel a raindrop on my bald head. I look up, but there are no clouds to be seen. I place my hand on top of my head, and my hand finds no water.
3. I feel a bug crawling on my arm. I look, and there’s nothing there. Well, my arm is there. But no bug.

There is now a drug on the market that is specifically intended to treat Parkinson’s-induced hallucination. However, in my case, the hallucinations stopped as soon as I started taking carbidopa / levodopa. So I started eating peyote again.