Tag: Parkinsons

10 Flippin’ Years

Ladies and gentlemen, boyds and gorillas, today marks a major milestone in my life. Ten years ago today, I received my Parkinson’s Disease (PD) diagnosis. Yup, believe it or not, it has been an entire decade. In that time, I have been through quite a few ups and downs with PD (not to mention other aging-related issues like arthritis and generalized hurtiness disorder). This special occasion, combined with the fact I have been failing to update this blog regarding recent developments in my PD treatments, has got me ta thinkin’ I should give y’all an update on my PD status. The one thing I have kept you up-to-date with is Lions Mane Mushrooms. If you’ve missed my lions mane posts, click here for the latest. I hope to get you some updates shortly regarding Nicotine, timed-release Levodopa, and a stool softener (and of course, this week’s ThrowBack Thursday).

Lion’s Mane Mushrooms: The Last Word (?)

One year ago, I started taking lion’s mane mushrooms in capsule form. This is merely a dietary supplement, so there’s no need for a prescription, and I expected it could take weeks or even months to see any results. Thus, I told you at the time that I would report back with any results after a year. And so, here we are. And I have indeed noticed significant improvements in some areas. These are those:

Better Sleep:

Prior to starting the lion’s mane regimen, I would often wake up multiple times during the night. Sometimes I could get back to sleep, sometimes not. In any case, I almost always got out of bed between 4:00 and 7:00. After about five months on lion’s mane, I began experiencing solid sleep. Once in a while, my dog wakes me up, or I’ll get up to urinate, but I almost always get back to sleep quickly. And I’m sleeping until somewhere between 7:00 and 9:00 (some days, even later).

Awakening Alive:

Before the shrooms, when I got up in the morning, I would take the day’s first dose of Levodopa (Levo) then just crash on the couch for half an hour (which is about how long it takes for the Levo to kick in). Until the Levo took effect, I usually felt incapable of doing ANYthing. Since about five months after starting lion’s mane, I have generally felt capable of doing things the instant I get out of bed. Once in a while, I even forget to take the day’s first dose of Levo!

Off Periods Reduced:

I take Levo every 3 waking hours. Prior to shroomin’ it up, I could always feel when time was approaching for the next dose. About 2.5 hours after taking a dose of Levo, I would start having anxiety, or sometimes depression. Since about five months after starting lion’s mane, the anxiety / depression have been noticeably less prevalent, and the Levo doses don’t tend to start wearing off until just a few minutes before my next dose is due. I’ve even been seriously late (up to nearly two hours late) taking a dose, and STILL didn’t have any anxiety / depression (though I did feel the ol’ physical fatigue on those occasions).

No RLS:

Before lion’s mane, I tended to experience Restless Leg Syndrome (RLS) one or two nights per week. (In my case, it manifests in the upper body, so I call it Restless Arm Syndrome.) Over the past month, I have only experienced RLS / RAS once. And that one time may not even have been RAS, as I was laying on the couch in a goofy position. And I’ve also been taking nicotine supplements during that time, so it’s conceivable that nicotine is what fixed the problem.

Reduced Medication:

I might expect improvements such as those described above if I had added a new medication or increased the dosage of one I’m already on. But there have been no such additions / increases. In fact, around the time I started noticing these improvements, I actually decreased one of my meds. I get Pramipexole (Prami) in tiny 0.125 mg pills. I had been taking eleven of these each day for the last few years, but reduced it to nine each day. (Since then, I tried reducing it to eight, but that led to a significant increase in anxiety.)


In conclusion, I highly recommend all you Parkinson’s sufferers out there try taking a lion’s mane mushroom supplement for at least a few months. But make sure you read those labels first to make sure you’re getting the correct part of the mushroom. Y’see, there are two main parts to a mushroom: the fruiting body and the mycelium. According to the articles I read, the helpful stuff is found only in the mycelium. I saw quite a few products on Amazon that only mentioned fruiting bodies. In the end, I settled on a brand that says it contains both parts.

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Hair-lelujah!

Colorado 2024 Trip Report (Days 2 through 5)

Day 2: In my previous post, I mentioned that I would be staying up late to see if waiting for exhaustion to set in would make for better sleep. Well, it worked. Too well. I didn’t wake up until 11 AM on Day 2. If … Continue reading Colorado 2024 Trip Report (Days 2 through 5)

Nicotine

A couple weeks ago, I mentioned the possibility of using nicotine to treat Parkinson’s Disease (PD), but I wasn’t sure at the time whether I wanted to try it for myself. Well, I’ve talked myself into it. I will be starting nicotine therapy within a week. And to make sure I don’t get confused as to what changes (if any) are being caused by which therapy, I will temporarily cease taking the lion’s mane mushroom supplements. As I said when I started on the shrooms, I’ll let you know if I experience any major changes in my PD symptoms. If I don’t notice any changes after a year, I’ll take stock of my condition and report back to you at that time.

Insomnia (cont’d)

The giant wooden mallet did not help me sleep. It just made a few small birds appear out of nowhere and fly in circles around my head while twittering melodiously.

The problem with the insomnia is that it exacerbates other problems. Since I’m no longer working, being tired during the day isn’t that big a deal. But when I’ve gone a couple days with very little sleep, anxiety starts creeping in. And this is not the usual garden-variety background anxiety that I encounter nearly every day during my “off periods”. Serious lack of sleep can lead to serious anxiety – not quite to the level of a panic attack, but it gets close. Fortunately, I do have a supply of Lorazepam, which I take only when truly needed, and which is very effective (though far from immediate) at killing anxiety and depression.

Then there’s this:

If I want to read a book during the day or even at bedtime, I can’t get more than a couple pages into it before I start nodding off. So, when I wake up at 2 or 4 in the morning, I should be able to just read a little and I’ll go back to sleep, right? Nope. When I want reading to put me to sleep, I can read for hours – even if it’s boring reading! Same goes for TV – seems like I’m always falling asleep when I try to pay attention to a show, but if I turn on the same show in the hopes it will put me to sleep…doesn’t happen.

I find myself wondering if there have been any studies to determine how dogs can sleep so damn much.