About 2.5 years ago, I was considering undergoing stem cell therapy to try to treat my Parkinson’s Disease (PD). Ultimately, I concluded that I would only resort to this treatment if I can find a safer place to get it (the company that was offering … Continue reading New Stem Cell Development?
The rumors of my death have been greatly exaggerated. That is, *if* there have been any rumors of my death. Yes, I got back from Maryland safely, and no, I have not completely clawed my keyboard apart.
None of my future travels are even in the planning stages yet. But, for several reasons, I’m thinking my next few trips will be to states that are within easy driving distance of Charlotte. That would mean road trips to Tennessee, West Virginia, and Regular Virginia. Maybe even Georgia and Kentucky.
After that, I may focus on states that are small enough to use a single hotel as a field HQ. I do get tired of having to tear down and build up my travelling pharmacy. This would prioritize Connecticut, New Hampshire (maybe), Rhode Island, Delaware, New Joisey, and New York City. I plan on doing NYC as its own trip, separate from upstate New York.
In the meantime, I’m dealing with a significant issue in regard to the Parkinson’s pump therapy. I also recently started another (very) physical therapy activity. I will write about both of these in the coming weeks.
Back in May of this year, I undertook a whirlwind tour of Iowa. One of my stops was the world’s largest truck stop, where I found the product pictured above: TravelJohn! (TM). The exclamation mark is actually part of the brand name, not a reflection … Continue reading Product Review: TravelJohn!
Good news! Over the last two weeks, I have had no new issues with the Vyalev pump. I am still experiencing the aftermath of the last big issue. There’s still a BIG nodule and the skin is still red, but it’s smaller and less angry-looking … Continue reading Vyalev Pump: More Good News
A few months ago, I typed about where/how to secure the Vyalev pump on your person. Now it’s about time I addressed where to stick the other end. But first, Lemmy Kilmister give ya a few details you may not already know. First off, the … Continue reading Vyalev Pump: Where do I put the other thing?
Day 1: I’ve been on enough so-called “scenic train rides” to know that they aren’t all worthwhile. So, I only ride those that sound truly unique. This morning, I could find nothing in my notes or in my head to explain what was special about … Continue reading Utah 2025 Trip Report (Days 1 through 3)
The only thing I really want to say about this week’s symptom is: Bleah! Seriously, this one’s pretty straightforward, so I don’t have a lot to say about it.
I remember sweating more than usual for a while, early in my Parkinson’s career. It seems to have stopped happening some time ago, but I wasn’t keeping an eye on the sweat, so I couldn’t tell you which drug (or other treatment) fixed it, or when. Or maybe my body has just gotten used to the increased sweating. Should my couch cushions be sopping wet after I lie down for a five-minute nap?
This was the final symptom I wanted to review as part of Thymptom Thurthdayth. If you’d like me to address any other symptoms, let me know in the comments section below. Otherwise, Thymptom Thurthday is out on its ass. I’ll probably replace it with Medication Monday. That should last about a month. By then, I’ll have some more amazing photos to share, as I will soon be trippin’ across Utah.
This week on Thymptom Thurthday, I’m talking about Dry Eye. But I’m not talking much about it, because it’s pretty straightforward.
I’ve seen Dry Eye referred to as a non-motor symptom of Parkinson’s Disease (PD). It’s caused by reduced blinking, which sounds more like a motor symptom to me. Either way, the solution for most folks is just to use lubricating eye drops. I experienced dry eye early on, and the eye drops worked for me. At some point, the problem went away. I can only guess that one of the PD drugs has returned my blinking to normal, but I really couldn’t tell ya which one. I still need the eye drops when I visit places with low humidity (e.g., Colorado), but while I’m here in Carolina, my eyes are wetter than my dog’s nose.
You may have noticed this blog has been a bit dead lately. Well, fear not! In another few weeks, this site will be flooded with Travel Reports, as I will be taking three trips in three months. These shall be:
August – Utah
September – New York City
October – Maryland
In the meantime, I still have more to say about the Vyalev pump, plus I plan to test and review TravelJohn!
Nearly a month ago, I told you about my experience getting through a major airport with the Vyalev pump and supplies, specifically flying from Charlotte (CLT) to Des Moines (DSM). As I noted then, I expected the TSA folks at the major airport that is … Continue reading Vyalev Pump and air travel: The Return
Day 14: I first heard of the Union Pacific Railroad Museum quite some time ago. So long ago, that I didn’t remember anything I’d heard / read about it, other than the fact that it’s an official company museum. Not knowing how big or how … Continue reading Iowa 2025 Trip Report (the last few days)
Voyages with Parkinson's 