Tag: Parkinson's

Insomnia

I’ve often heard it said that Parkinson’s Disease (PD) affects each individual differently. As the disease progresses (and as I try different medications), I’m noticing that PD affects the same individual differently, at different points in time. At one time, tremors were my most bothersome symptom. Since starting Levodopa a few years ago, the tremors have been largely controlled, replaced with a growing (sometimes almost crippling) fatigue. On my latest “drug cocktail” the fatigue is significantly reduced, but I’m still not sleeping well.

My insomnia started small, and advanced slowly enough that I was able to implement a series of temporary fixes that didn’t seem temporary at the time. A couple times each year, I would think that I had found THE solution to my sleep issues…only to have the problem return a few months later. I blamed my bed, the T-shirts I wore to bed, my alarm clock – I made changes in each of these areas, and each helped…for a while. It was probably about a year ago that I finally accepted that this insomnia is part of the PD, and isn’t going to be solved by changing something outside my body. I tried dietary supplements (melatonin, magnesium, iron, CBD) and NyQuil. As with the previous approaches, most of these seemed to help, but only for a while. The most frustrating part of it all is that once in awhile, I get a solid night of sleep, and can’t figure out WHY.

But after watching some old Warner Brothers cartoons, I think I finally found the solution. I’m gettin’ me a giant wooden mallet. Or maybe an anvil.

Gatlinburg, Day 2 (morning)

Today is my roller coaster day! I will be visiting Dollywood, primarily to try out the amazing-looking roller coaster known as Lightning Rod. This will be my third visit to Dollywood, which is a beautiful park with a surprisingly excellent selection of coasters.

Dollywood has also played an important role in my figuring out how to continue enjoying amusement parks as my age and my Parkinson’s continue to advance. I’m not full-on diabetic, but I have occasionally experienced what appeared to be low blood sugar episodes. During my first visit to Dollywood (which was before my Parkinson’s diagnosis), I learned the importance of staying “sugared”. After just a few rides, I found myself feeling quite woozy and sick to my (empty) stomach. But after a quick lunch, I felt great! For a while. Then I started feeling dizzy and weak. But after drinking enough water to fill Dolly’s bra (and she didn’t make it easy), I felt great again! My next visit to Dollywood (maybe 4 years ago?) was the first time I tried taking “extra” Carbidopa-Levodopa pills – three pills with each dose that day, rather than my normal two pills – again with excellent results. (This was OK’d by my Parkinson’s doctor, by the way.) Finally, it was three years ago at Silver Dollar City (Dollywood’s former sister park) when I first recognized my propensity to overheat, and quickly found out how easily it could be remedied. So as long as I stay hydrated, sugared, Levodoped-up, and cool, it should be a good day.

GOCOVRI: It begins

A few weeks ago, I started a new Parkinson’s medication called GoCovri. This is in addition to (not a replacement for) the two other Parkinson’s meds that I’m already on. It’s supposed to reduce my “off” periods. Initially, it seemed like it was working quite well. I was feeling more awake and productive than I had felt in quite awhile. But it seems less consistent now, and I am also experiencing a nagging anxiety, which has led to me taking anti-anxiety meds far more often than in the past. I’ll probably try to wean myself off the GoCovri over the next couple weeks, to try to gain a clearer picture of the effects it’s really having (both good and bad). In the meantime, here’s some impromptu fiction:

My dog writes poetry. Some of it is serious stuff, but he mostly writes ribald limericks. Like the one about the young woman from Nantucket and her encounter with Lord Yuck. Mind you, these poems don’t adhere to classic limerick form. Many of them are 900 lines long and have no rhymes whatsoever. But, y’know, he’s a dog. What the Hell do you expect?